Thursday, February 26, 2009


I guess I need to let you all know that I am doing better.

I've been enjoying some healthiness lately, and I've been so 'busy' I haven't been able to go to the blog that I reserve for complaining!

So the new treament, CIMZIA, is working!

Praise GOD! Praise GOD! Praise GOD!

I had a reaction to the injections (no big surprise there)....and it was a pretty awful 2 1/2 days....BUT!.....the medicine is working.

I still have diarrhea, and lack of bowel control, but I do not feel "SICK". Hard to explain. But I can tell the difference. Haven't had any fish hooks since then. Plus, I will always have diarrhea and lack of bowel control. I now have 'short gut syndrome', as a result of having a bunch of my guts removed. But hey.......God has granted me peace about it, and I am just so blessed at having another chance at 'life'. Cimzia treatment is on Tuesday. I will be pre-loading with Benadryl, in the hopes of averting or minimizing a reaction.

For now......I'm back.

And I am oh so very grateful.

Tuesday, February 10, 2009

48 Hours

In 48 hours...

I will begin receiving a new treatment.

Right now...

All I can think about is my mouth.

I have bloody, painful sores all over the inside of my mouth.

My mouth, my gums, my tongue, my throat.

They are related to the massacre of disease that is raging in my guts.

If you were to chew on a sandwich made of stainless steel and razor blades, you might come close to what I'm experiencing right now.

In 48 hours...

A new journey begins.

In 48 hours...

Monday, February 2, 2009

Fish Hooks

So at 12:01 a.m., pumped up on adrenaline after watching over six hours of football (most of it played OVER and OVER and OVER again), I made these awesomely grandiose plans for my Monday.

All of the laundry would get done.

The huge box of 'paperwork' would get tackled, completed, and filed.

And I would scrapbook the rainy afternoon away.

And then the fish hooks got in the way.

6:30 a.m.

Diarrhea started.

Eight times before 8:00.

Fish hooks, you say?

That's the way I describe the pain.

Imagine that a fish hook is being pulled through your guts, all thirty feet of them. Every time you have a bowel movement. And then imagine that you have over ten bowel movements a day. What if you had fifty bowel movements a day?

Some people compare it to swallowing a saw.

Nope, it's fish hooks for me.

So my grandiose plans have been shot down.

I will settle for getting all the laundry done.

Perhaps next Monday I will put scrapbooking FIRST on my list.