Wednesday, June 17, 2009


Forgive me, friends.

I forget to post on this blog when things are going well.

Because this blog, for me, is about venting.

And when one is feeling well, one has no need to vent, right?

So what I'm trying to say is, I'm feeling pretty good.

Praise God....AGAIN!

The combination of new drugs, the restart of the Remicade treatments, and the addition of steroids has made me pain free.

Not symptom-free, but pain free.

I can live with symptoms. And I can live with some pain. But I cannot live like I was living before the pain went away. So I am just thankful that it did.

And the bet I made with God? I'm still keeping my end of the deal. I get up each and every day, and I am productive. I am not taking a single day for granted. Okay, sometimes I take a nap. But I'm pretty sure He's okay with that. Even HE rested on the seventh day, right?

I have my next Remicade treatment the last week of June. Not thinking about or worrying about it until it gets here. It is going to suck, but it will be temporarily sucky. And then it will be six weeks til the next one. And then eight weeks from thereafter.

It is going to take some time for me to get this new doctor/fire old doctor situation squared away. So I'm not sure exactly when I'm headed to UF Shands, but since I'm no longer considered 'emergent', there really is no hurry if my symptoms and pain are controlled.

I am headed to a pain managment specialist next week, at the urgency of all my physicians. I have different types of pain in different areas of the body, and not one pain medication works for all of off I go to a pain doc. I'm cool with that. I think it's a great idea, and I wish they had thought of it sooner. Oh well. Nothing ventured nothing gained.

I will try to keep posting even when things are going well.

Or, you can always check out my other blog, which is filled with laughter and mayhem, which I post every day:

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