I saw 178.
Oh my God.
And then I ran out of medicine while we were away, snowbound in a blizzard for days and days and days.
And my doctor couldn't refill my script in West Virginia.
So it ran out.
And the weight started to drop.
Now I am 'back' to 164.
And the sores in my mouth are gone.
AND....
The diarrhea has returned with a vengeance.
And my abdominal pain is returning, slowly, steadily....I fear a return of the intractable pain from April.
At what price, victory?
WTF?
What do I do now?
I guess that's what doctors are for.
Cripes.
And Remicade awaits on Tuesday.
Woohoo!
Subscribe to:
Post Comments (Atom)
That sucks. I have Cerbral Palsy, but one of my best friends has Crohn's. She was on remicade for a while. She has had her whole colon removed. She's 29 & on Humara (don't know if I spelled that right) now.
ReplyDeleteI have been reading your blog for weeks now. You & Rachel have very simular humors. You should stop by sometime. Don't know if you would like to chat with her, but if so e-mail me (located on the right of my blog).
Hope this finds you well & not in the middle of a flare... {:)
Shannon