Yesterday was Remicade day.
It went pretty smooth.
Had the reaction, Miracle Worker nurse was right there with the back-up meds, and I finished in record time - 4 1/2 hours!
And then I woke up this morning.
LITERALLY every part of my body is bright red, the color of a steamed lobster.
I have red sheer curtains in my dining room, and if I stood behind them, you wouldn't be able to see me.
That is how red I am. (okay, no redhead jokes now, that's not what I'm talking about!)
And, not only am I red, but I am scorching hot to the touch, but I have no fever.
Once again, I have hives on the palms of my hands, and the pseudo-electric current is slowly coursing through my body, but not like it does during the infusions.
When I woke up this morning, I could not move my arms or my legs.
But I took my time, and finally was able to shake them alive again.
I went ahead and medicated myself, called Miracle Worker Nurse so she could document the continued reaction for the file, and wholeheartedly agreed that I took the right meds, at the right dose, and to continue with them every four hours until the reaction goes away.
Suffice it to say, I will be dozing off very shortly.
And you thought this post was going to be about a scrumptious steamed lobster slathered in hot melted butter with a fresh baked loaf of French bread on the side?
Yeah, I wish it had been.
Sigh.
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Hopefully it will all be worth it after these treatments are done. I remember your last bout with this treatment and it sounds a *little* better than last time. You were in so much agony, oh I remember that post. So take it easy for a while. I know you can't sit still but I am the Queen and I *demand* that you REST up!
ReplyDeleteOh my Queen.
ReplyDeleteThe treatments will never be done.
I will be having them every four weeks for the rest of my life, until there is a cure.